TrialNet Goes to Camp!
The Diabetes Education and Camping Association (DECA), which represents camps worldwide, is partnering with Type 1 Diabetes TrialNet on important research that is working to find a way to prevent type 1 diabetes.
Many camps are offering a risk screening for families of campers. We hope you will take advantage of this convenient opportunity to screen your entire family and help to advance this important research.
About Screening - the first step in the pathway to prevention
Although the symptoms of type 1 diabetes may seem to come on suddenly, researchers now know that the condition develops over a long period of time. TrialNet offers a screening test for relatives of people with type 1 diabetes to look for proteins in the blood called "autoantibodies" that indicate an increased risk for the disease.
If test results show an increased risk, participants will be offered the opportunity for close monitoring and may be eligible to join research studies testing new ways to delay or prevent the disease. TrialNet is currently offering two prevention studies for people at increased risk:
- The Oral Insulin Prevention Study is testing whether a daily oral insulin capsule can prevent or delay the disease. Results of an earlier study suggested that oral insulin may delay type 1 diabetes in people who have higher levels of insulin autoantibodies.
- The AntiCD3 Prevention Study is testing whether a drug called teplizumab (or anti-CD3) can prevent or delay type 1 diabetes in high-risk (antibody positive) relatives of people with the disease. In previous studies, teplizumab helped to preserve remaining insulin secretion in people newly diagnosed with type 1 diabetes
The screening takes only about 15 minutes and requires a blood test. TrialNet staff will work with parents to minimize the discomfort for children (numbing cream will be available). We also recommend parents talk with their children about the test before arriving at camp.
Screening is available at no charge to those who are:
- Age 45 and under and have a parent, sibling or child with type 1 diabetes, or
- Age 20 and under and have a niece, nephew, aunt, uncle, grandparent, half-sibling or cousin with type 1 diabetes.
To find a list of participating camps and screening dates/times, click here to visit the TrialNet Facebook Page, or to find out if your camp is participating and for dates/times of screening, visit your camp’s website or contact your camp.
Don’t want to wait for camp to have your family screened?
For more information about TrialNet, please visit www.DiabetesTrialNet.org
You can also have your family screened at one of our nearly 200 TrialNet sites by completing the online screener. Screening test kits are also available by mail. This kit can be taken to a local doctor’s office or lab to collect a blood sample for analysis by TrialNet’s lab.