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Type 1 Diabetes - TrialNet e-news - Spring 2011


TrialNet Reaches Important Milestone—screens 100,000 people for type 1 diabetes
TrialNet has reached an important milestone: screening 100,000 people. This is a major achievement because it has helped researchers better predict who will develop diabetes and when it will require treatment. Early detection is vital. It helps patients avoid a severe, life-threatening condition called diabetic ketoacidosis, makes it possible to avoid dangerous complications that can occur when diabetes goes undetected, and may also help the body make insulin for a longer period of time.

“We want to thank everyone who has helped us to reach this important milestone,” said TrialNet Chair Jay Skyler, M.D. “Screening is the first step on the pathway to prevention and provides an important opportunity for intervention at an early stage.” Go

NIP Pilot Study Confirms Value of Larger Study
A pilot study using the nutritional supplement docosahexaenoic acid (DHA) to prevent type 1 diabetes in newborns has confirmed the value of conducting a larger study. The goal of the Nutritional Intervention to Prevent (NIP) Type 1 Diabetes Pilot Trial was twofold: 1) to learn more about the role of DHA in preventing autoantibodies for type 1 diabetes, and 2) to determine whether a full-length study would be feasible, considering how difficult a clinical trial with babies might be. The pilot study was conducted at nine TrialNet locations. Go


  Natural History Study of the Development of Type 1 Diabetes: Screening and observing relatives of people with type 1 diabetes to learn more about how the disease occurs.

Oral Insulin for Prevention of Type 1 Diabetes Study
: Testing whether a daily oral insulin capsule can prevent or delay type 1 diabetes in at risk relatives of people with the disease.

Anti-CD3 Prevention Study
: Testing whether teplizumab can stop or slow down the autoimmune reaction that is destroying beta cells in people who are at high risk of developing type 1 diabetes.


The Scheiber's Make Type 1 Diabetes Research a Family Affair
Parents to six children, Dave and Janie Scheiber remember first hearing about TrialNet at a back-to-school event organized by Tampa Bay JDRF and the University of South Florida (USF). The event was designed to help parents of children newly diagnosed with type 1 diabetes prepare for a new school year. Nine-year-old Davey Scheiber had been diagnosed with type 1 diabetes earlier in the summer, leaving the family a bit overwhelmed at how to incorporate finger pricks and insulin shots into his daily routine. Go

Kelli Oliver...Helping to Change History
Kelli Oliver became involved in TrialNet research when her brother, Dean, was diagnosed with type 1 diabetes at age 13. She was only 10 years old herself. From then on, every six months she would go to the University of Florida (UF) to get screened.

“We had a grandmother with type 1 diabetes who died from the complications of the disease,” explains Kelli. “So we witnessed the possible side effects of not regulating it." Go

For the Gilberts, Diabetes Camp Was More Than They Expected
When the Gilbert family attended Camp Kandu in Florence, Mississippi, last year, it was their first time at a diabetes camp. Their hope was that their 5-year-old son, DeJuan, who was diagnosed with type 1 diabetes when he was 2, would get to know other children like himself. Go

Meet the Principal Investigator: Henry Rodriguez, M.D.
Type 1 Diabetes TrialNet is proud to work with the world's leading experts in type 1 diabetes. In this issue, we feature TrialNet principal investigator Henry Rodriguez, M.D., chair of the TrialNet Natural History Pathway to Prevention Study, and professor of pediatrics and clinical director of the University of South Florida (USF) Diabetes Center. Go


It’s time for camp

Diabetes Education and Camp Association (DECA) provides leadership and education to better enable diabetes camps to fulfill their purpose: to help people affected by diabetes lead healthier, happier, and more productive lives through good diabetes management. More than 400 diabetes camping programs worldwide help more than 30,000 youth with diabetes and their families. Over the past 15 years, DECA has partnered with TrialNet to offer screening at camps. In 2011, more than 1,650 children and adults were screened at DECA camps. To find a camp near you, visit www.diabetescamps.org.

Spring JDRF Walk season is here

JDRF Walk to Cure Diabetes draws people together in a healthy activity for a worthy goal, raising money to improve the lives of all people affected by type 1 diabetes. Funds help to accelerate progress on the most promising opportunities for curing, better treating, and preventing the disease. The walk is fun for families and builds camaraderie among company employees. TrialNet offers screening at many camps. To find a walk near you, visit walk.jdrf.org.

TrialNet is now on Twitter
TrialNet is now on Twitter, a real-time information network that connects the world to the latest news, blogs, stories, and opinions. Simply follow this link: https://twitter.com/#!/T1D_TrialNet to find out the latest TrialNet news!

Tell the world your TrialNet story
Every day, TrialNet staff members hear wonderful stories from study participants, and now we’d like your help to share those stories through YouTube. This is your chance to tell the world why TrialNet research is important to you and encourage other families who have a relative with type 1 to get involved in research. Videos will be posted on the TrialNet YouTube channel.

All it takes is a camera or phone and four easy steps! Learn More >

  TrialNet risk screening available virtually anywhere
TrialNet risk screening is available at nearly 200 sites across the United States or anywhere via mail. You can find a TrialNet screening location by completing the online screener. To request a test kit by mail, just contact one of our clinical centers listed here. The test kit can be taken to a local doctor’s office or lab to collect a blood sample for analysis by TrialNet’s lab. Risk screening is available at no charge to those who are:
  1. Age 45 and younger who have a parent, sibling, or child with type 1 diabetes, or
  2. Age 20 and younger who have a niece, nephew, aunt, uncle, grandparent, half-sibling or cousin with type 1 diabetes.

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Join TrialNet in the fight against type 1 diabetes!

Here's how YOU can help:

  • If you have a relative with type 1 diabetes, find out if you are eligible for screening; if you are, get involved and get your family screened
  • Forward TrialNet E-News to family members and friends who might be interested
  • Tell your TrialNet Story by creating a video for TrialNet’s YouTube channel
  • Share this information on your MySpace or Facebook page
  • Follow TrialNet on Facebook and Twitter