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Type 1 Diabetes - TrialNet e-news - Spring 2013


The Great Katie Kate Invites Kids to Join TrialNet in Making a Difference
A new children's book, written by Maitland DeLand, M.D., beautifully illustrates the positive actions children can take when they have a relative with type 1 diabetes.

Be a Hero! Help Prevent Diabetes with The Great Katie Kate introduces readers to a young super heroine named Katie Kate. She, in turn, guides them through a TrialNet screening and explains its importance to type 1 diabetes research and families like their own. The story takes place at a diabetes day camp, where children with diabetes, as well as sisters and brothers without diabetes, attend together. Go


Pathway to Prevention Study (formerly the Natural History Study of the Development of Type 1 Diabetes):
Screening and observing relatives of people with type 1 diabetes to learn more about how the disease occurs and to identify those who are eligible for prevention studies.

Oral Insulin for Prevention of Type 1 Diabetes Study:
Testing whether a daily oral insulin capsule can prevent or delay type 1 diabetes in at-risk relatives of people with the disease.

Teplizumab (Anti-CD3) Prevention Study:
Testing whether the drug teplizumab can stop or slow down the autoimmune reaction that is destroying beta cells in people who are at high risk of developing type 1 diabetes.

Abatacept Prevention Study:
Testing whether abatacept, a medication that has shown promise in preserving insulin production in people newly diagnosed with type 1 diabetes, can help delay or prevent onset of the disease in people at increased risk.

LIFT (Long-Term Investigative Follow-Up in TrialNet) Study:
Monitoring the long-term progress of participants from the Pathway to Prevention Study or a prevention study who have developed type 1 diabetes; or participants from new onset studies that have ended.



Diabetes Camp—the perfect opportunity for families to get screened
Because family members of people with type 1 diabetes are at 10-15 times the risk of developing the disease, the importance of risk screening cannot be overstated. Summer diabetes camps, attracting 30,000 children and their families annually, offer the perfect opportunity to identify people at risk for type 1 diabetes. Last year, more than 1,400 family members were screened at camps nationwide. Go

Madison and Elizabeth

JDRF Walks offer families first step on Pathway to Prevention
Each year, TrialNet screens hundreds of people at JDRF Walks nationwide. In 2013, 1,374 people were screened at JDRF Walks. Those who are identified as being at high risk may be eligible to take part in TrialNet prevention studies.

The Yearry family, of Paducah, Kentucky, was screened at the 2013 Paducah JDRF Walk. Their five-year-old daughter, Madison, showed an increased risk for type 1 diabetes, despite having a normal screening two years earlier. Madison is now enrolled in the Oral Insulin Prevention Trial, which gives Mom, Elizabeth, peace of mind. Go

Dr. Schatz

TrialNet Principal Investigator Desmond Schatz Elected ADA President
Desmond Schatz, M.D., TrialNet Principal Investigator at University of Florida, was recently elected President of the American Diabetes Association (ADA). His term will begin in 2016. Meanwhile, he will serve as Vice President in 2014, and as President-Elect in 2015.

"This is a great honor and privilege. I'm humbled to serve the ADA, whose mission is to improve the lives of all those affected with diabetes and to prevent and cure the disease," Dr. Schatz says. Go


TrialNet risk screening available virtually anywhere

TrialNet risk screening is available at locations throughout North America, Europe, Australia, and New Zealand. You can find a TrialNet screening location by using our online referral tool. If you are in the United States, you can also request that a test kit be sent to you by mail. To request a test kit, go to www.Pathway2Prevention.org and complete the informed consent process. The test kit can be taken to a local medical lab to collect a blood sample for analysis by TrialNet’s lab. Risk screening is available at no charge to those who are:

  • age 45 and younger who have a parent, sibling or child with type 1 diabetes, or
  • age 20 and younger who have a niece, nephew, aunt, uncle, grandparent, half-sibling, or cousin with type 1 diabetes.

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Join TrialNet in the fight against type 1 diabetes!

Here's how YOU can help:

  • If you have a relative with type 1 diabetes, find out if you are eligible for screening; if you are, get involved and get your family screened
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