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Type 1 Diabetes - TrialNet e-news - Spring 2013

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Diabetes Camp - Connecting Families and Research

Jake Henderson

Jake Henderson

"If it helps me or someone else, it’s only positive and has the chance to make things better."
—Jake Henderson

The Hendersons of Keller, Texas, are just one of the thousands of families who have benefited from TrialNet screenings at diabetes camp. In August 2012, Robin Henderson was volunteering at Camp Aurora, when she learned about TrialNet screening. She immediately arranged for her three children to get screened. “Because I have type 1 diabetes, it was a no brainer for me,” she said. “If you can be prepared for it, why wouldn’t you?”

When her oldest child Jake’s screening results came back positive for increased risk of developing type 1 diabetes, Robin scheduled follow-up testing for him at her closest TrialNet site, University of Texas Southwestern (UTSW).

That’s where they learned Jake was eligible for TrialNet’s AntiCD3 Prevention Study. The 16-year old is helping researchers learn more about the drug teplizumab’s use in preventing onset of type 1 diabetes.

“My thought was, if we could possibly buy him time, we should do it,” explained Robin. “It’s two weeks out of your schedule, and I can see how that could hinder some people. I teach at a private Christian school, and my principal was very supportive.”

Jake says of his experience, “If it helps me or someone else, it’s only positive and has the chance to make things better.”

There are over 400 diabetes camping programs worldwide helping more than 30,000 youth with diabetes. The Diabetes Education and Camping Association (DECA) provides leadership and education to better enable diabetes camps to fulfill their purpose: to help people affected by diabetes lead healthier, happier, and more productive lives through good diabetes management. Diabetes camps are a great way to meet other families with type 1 diabetes.

To find a diabetes camp near you, visit www.diabetescamps.org.